Living with CML - Chronic myeloid leukaemia: Blogging

New CML Blogger, Philadelphian

Wed, 16 Jul 2008 12:14:21 GMT

Just spotted a new CML blogging

Me, CML and everything else

Hello Philadelphian

Rob

Technorati Tags: CML, Leukaemia

Hello Rio.

Mon, 31 Mar 2008 09:37:08 GMT

Just a quick Hello to Rio Williams who has started a journal over on Caringbridge

Rio Williams at CaringBridge..

You will have to enter you email address to get access.

Keep up the journal Rio as I am sure we will want to keep up to date with your progress

Rob

Technorati Tags: Rio Williams

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Writing Helps Cancer Patients

Mon, 25 Feb 2008 16:58:10 GMT

I know this blog has really helped me in dealing with the whole leukaemia situation but now a study says that writing can help people with cancer and make an improvement to there lives...

'A new oncology study suggests a single twenty-minute writing session may help change the way cancer patients think and feel about their disease and have a positive impact on an individual’s quality of life.'

George Town University Article

Rob

Technorati Tags: blogging

New year and a new CML Blogger

Fri, 04 Jan 2008 15:54:50 GMT

Rhonda Radliff in Houston, is a recent CML diagnosee (is that a real word...) and she has started a blog up at

http://www.rhondaradliff.blogspot.com/

Hi Rhonda, hope everything is working out for you.

Rob

New CML Blogger

Wed, 12 Dec 2007 18:14:58 GMT

A quick hello to Rob Van Daalen , who has just been diagnosed with CML and has started his blog up below

My Leukaemia (CML) Blog (That sounds inviting, no?)

I will add Rob to the list of bloggers and hopefully do some cleaning up of the list of those that for whatever reason haven't been updated...

Rob

Vote for Baldy

Fri, 02 Nov 2007 13:39:41 GMT

I have been a reader of Adrian Sudburys Baldy Blog at http://baldyblog.freshblogs.co.uk since he started it up...

Well he has go through to the 2007 weblog awards finalist list in the medical/health issues section..

Adrian has the link on how to vote on his site at http://baldyblog.freshblogs.co.uk/2007/11/vote_for_baldys_blog.html so go ahead a vote for him if you have enjoyed his blog as much as I have.

I have voted, and it looks like he is currently doing well in the voting with over 60% of the 147 votes casted so far..

Good Luck Adrian , not sure the 2 readers of my blog can make a major impact on the result tho..

Rob

Technorati Tags: 2007 Weblog awards

5000 page views

Sat, 15 Sep 2007 17:55:32 GMT

Hit the milestone of 5000 page views to this site since I started back in December, from about 90 posts...

Does it matter not at all!

The act of me writing the blog has been a tremendous help to me in so many ways, it has made me go and look for information and material on CML and beyond, it has put me in touch with so many others in similar situations, and it has been a form of therapy helping me get me thoughts down on paper, so to speak of my journey and progress.

Is it of use to friends (old and new) and family I hope so too, tell me what you think

Rob

Children with CML - Support Site

Thu, 06 Sep 2007 14:23:22 GMT

Just a quick plug (if you haven't seen it) for a new web site specifically created for families who have children with CML

Children with CML - http://www.childrenwithcml.org.uk

Rob

Technorati Tags: CML, Leukaemia

A couple of hellos

Thu, 19 Jul 2007 14:54:04 GMT

to a few more bloggers

ChipChat: Chip VanAlsburg’s Personal Weblog - Chip has recently been diagnosed with CML and has just started blogging

and also Kermit Hops The World,

who is an every day stuffed-toy of a frog with itchy feet, er, flippers. I have my own passport and am in charge of two humans, Paul & Trish. Paul suffers, er, flatulence a lot and has leukaemia and needs a cure

Rob

Technorati Tags: CML, Leukaemia

Hello DR RAZAK: a new CML Blogger

Mon, 09 Jul 2007 09:13:57 GMT

Hi Dr Razak a new blog from a CML patient (and orthopaedic surgeon), hope to see you blogging away and giving us your insights, I will add you to my bloggers list

http://drrazak.blogspot.com

There have been a few blogs I have pointed to with just one post from CML patients, and it is hard for many to write and publish to the world about what they are going through. For me it wasn't an alien experience having had a number of other blogs which I have had over the years , and has been part of my way of coping I think. It really started for me anonymously but then as it has progressed I have pointed more people to this site as a way for them to keep up to date with what is going on. In some way it is just as important to others who may feel uncomfortable talking to me about it who can get an update by simply reading.

So for anyone thinking about blogging as a CML patient or not, I would say go for it, give it a try, just write down what you are thinking about, or what you want to share with friends and family doesn't always have to be about CML can be about anything you like

Rob

Technorati Tags: CML

Bertie's Blog: From Leukaemia CARE

Mon, 18 Jun 2007 10:55:44 GMT

A new blog just starting for the UK Leukaemia CARE who in there own words...

'exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphoma and the allied blood disorders. Our work extends to the welfare of families and carers, as well as that of patients themselves. Quite simply... 'supporting a quality of life''

It is a site I visited in my early days of diagnosis and found the resources to be great and read the latest edition last week at the hammersmith.

Clare is the blogger and I have subscribed to the feed and hope to be reading about all those great stories

'This blog will show some of the triumphs and successes of Leukaemia Care's fundraising, and give our supporters the chance to get to know us a little bit better. '

Link to Bertie's Blog: Welcome.....

Rob

Technorati Tags: Leukaemia

A couple more CML bloggers

Fri, 08 Jun 2007 15:22:49 GMT

My Pinnacle By Glen

Arts CML Updates By Art in Vancouver

Rob

Technorati Tags: CML, Leukaemia

Kansan - People who have leukemia blog

Mon, 21 May 2007 13:12:35 GMT

Kansan has just started up his/her blog at

http://peoplewhohavelukemia.blogspot.com

hope to hear more from you...

Rob

Technorati Tags: CML, Leukaemia

Imagine having 2 types of Leukaemia at the same time...

Wed, 16 May 2007 16:42:44 GMT

Scary thought huh! and apparently there is only one person in the world with this combination! Well Adrian Sudbury has been diagnosed with two distinct types of Leukaemia, and he is blogging as Baldy Blog (see link below) and including some videos of his experiences..., which he speaks very openely about his thoughts and future, watch them on his homepage

Link to Baldy's Blog

Adrian has both CML and AML (Acute Myleoid Leukaemia) at the same time, which it sounds like is unique!

Rob

Technorati Tags: CML, AML, Leukaemia

CML Stuff and links

Mon, 23 Apr 2007 11:15:33 GMT

Not really had chance to blog too much recently and have found all sorts of interesting stuff on the net, so here goes with some of the better bits :o

Imatinib good for stomach cancers - I had read about a few studies about using Imatinib for GIST (Gastrointestinal stromal tumors), but last week saw an announcement that was covered in a number of web sites

Vivant Medical , Made in Switzerland , The Cancer Blog

Fancy a Scholarship looking at CML in Glasgow - to investigate BcrAbl localisation and its relationship to molecularly targeted drug insensitivity in Chronic Myeloid Leukaemia (CML) stem cells

International Scholarships

CML is a Somatic Mutation - Most oncogene mutations, however, are not inherited from one's parents. They develop as the result of exposure to a carcinogen or from spontaneous mutations that occur when normal cell division goes awry...

This Wasn't in the Plan

Healthy Eating - I am still trying to eat more healthily, primarily as way to reduce the nausea from the imatinib but also as a way to be healthy, experts believe that up to two thirds of all cancer cases stem from lifestyle factors such as smoking, lack of exercise and diet.. From the

Cancer Blog

Rob :)

Technorati tags: CML, Leukaemia, Imatinib, GIST, Glasgow, Somatic Mutation, diet

Tough Decisions for some With CML

Tue, 10 Apr 2007 08:40:30 GMT

Just surfed over to King Davids Blog, looks like he has made a very tough decision with his treatment, coming off the chemotherapy after a couple of failed transplants.

I don't know what I would do in that situation, would it be the hardest or easiest one to make if faced with it. But I am sure it is something that every Leukaemia patient has thought about at some point or other. I know I have, especially in those early weeks of diagnosis when your head is spinning and you don't know if you are coming or going.

I actually found the site via the Quilts 4 Leukaemia site.

Rob :)

Technorati tags: chemotherapy, CML, leukaemia

Becky's Blog

Tue, 03 Apr 2007 16:51:10 GMT

I spotted Beckys new blog after a quick search on technorati for the word/phrase CML.

http://illinoistotexas.blogspot.com/

Rob :)

Technorati tags: CML, Gleevec, Imatinib

29 years with CML and counting...

Mon, 19 Mar 2007 13:15:15 GMT

For Skip Duffie, wow....but it shows what is possible, even without the modern drugs, and as he says...

people ask how I managed to survive so long, well I had nothing to do with it. I was just along for the ride....

Skip is keeping a CML and ME diary and updates it regularly...

Link courtesy of Elizabeth at http://www.cmlsupport.org.uk

Rob

Technorati tags: CML, Skip Duffie, cmlsupport.org.uk

Claiming my blog on technorati

Fri, 23 Feb 2007 13:57:04 GMT

Technorati Profile

Other Blogs

Fri, 26 Jan 2007 15:49:35 GMT

My original plan was to add some links, but not just and endless list of web content on CML, it is easy enough for people to search for it IMO

However one thing I am finding are other bloggers out there who are putting there thoughts down about CML, Leukeamia and related stuff and so I have added a bloggers list on the left hand side...

For now added 2 people to this list

http://strengthtoday.blogspot.com/ - James from Florida, who seems to be a bit of a health nut, gotta get me some of those a-sigh-ees

and

http://matthewsinclair.blogspot.com/ - Matthew from Scotland

I have subscribed to both of there RSS feeds and will follow there progress with interest.

Rob :)